Terms & Conditions

1. Purpose of Our Website

The Andrea Foundation for EDS is dedicated to Ehlers-Danlos syndrome awareness, education, advocacy, resources, and support.

Our website and materials are intended to provide general educational and informational resources and to support the charitable mission of the Foundation.

2. Important Medical Disclaimer

3. EDS Awareness Guide and Digital Products

The EDS Awareness Guide offered by The Andrea Foundation for EDS is a paid digital educational product.

When you purchase the Guide, you receive a limited, personal, non-exclusive, non-transferable right to access and use the digital material for your own personal, noncommercial purposes unless otherwise expressly stated.

You may not, without our written permission:

• Reproduce the Guide
• Resell the Guide
• Redistribute the Guide
• Upload the Guide publicly
• Share copies with others
• Republish substantial portions of the Guide
• Modify the Guide for resale
• Commercially exploit the Guide or its contents

Purchasing or reading the EDS Awareness Guide does not create a doctor-patient, healthcare-provider, counselor-client, or other professional relationship between you and The Andrea Foundation for EDS.

4. Digital Product Sales & No-Refund Policy

The EDS Awareness Guide and other digital products offered by The Andrea Foundation for EDS are digital downloads.

Because digital products cannot be physically returned after they have been purchased, accessed, downloaded, or delivered, we generally do not provide refunds, returns, cancellations, or exchanges for digital purchases, except where required by applicable law.

Please carefully review the product description and your order before completing your purchase.

If you experience a technical problem receiving, accessing, or downloading a digital product you purchased, please contact The Andrea Foundation for EDS. We will make reasonable efforts to help you obtain access to the product you purchased.

If you believe you were accidentally charged more than once for the same transaction or there was another payment-processing error, please contact us so the matter can be reviewed.

By purchasing a digital product from The Andrea Foundation for EDS, you acknowledge that you are purchasing a digital product and agree to this Digital Product Sales & No-Refund Policy, subject to rights that cannot legally be waived.

5. Donations

Donations made to The Andrea Foundation for EDS help support our charitable mission.

Donations may be processed through third-party payment processors or fundraising platforms.

Those third-party services may have their own terms, fees, privacy policies, and transaction requirements.

Unless otherwise expressly stated, making a donation does not entitle a donor to goods, services, medical treatment, individual assistance, or other personal benefits.

The Foundation intends to use donated funds in furtherance of its charitable mission, subject to applicable law and any valid donor restrictions expressly accepted by the Foundation.

6. Educational Information

Our website and resources may contain information concerning Ehlers-Danlos syndromes, symptoms, patient experiences, healthcare topics, advocacy, and related subjects.

This information is intended to increase awareness and education.

We make reasonable efforts to provide useful information, but medical and scientific knowledge can change. We do not guarantee that every piece of information will always be complete, current, or applicable to every individual.

7. Personal Stories and Experiences

Our website and social-media platforms may share personal stories and experiences involving EDS.

Individual experiences vary significantly.

A person’s story, symptoms, diagnosis, treatment, outcome, or experience should not be interpreted as a prediction or guarantee of another person’s experience.

8. No Guarantee of Results

The Andrea Foundation for EDS does not guarantee any particular medical, educational, personal, financial, fundraising, or other result from using our website, resources, Guide, programs, or information.

9. Intellectual Property

Unless otherwise stated, original content created or owned by The Andrea Foundation for EDS — including written materials, educational resources, digital downloads, graphics, logos, website content, videos, and other original Foundation materials — is owned by or licensed to the Foundation and may be protected by applicable intellectual-property laws.

You may not reproduce, distribute, sell, republish, modify, or commercially exploit protected Foundation materials without appropriate written permission.

10. Acceptable Use

You agree not to:

• Use our website for unlawful purposes
• Attempt unauthorized access to our website or systems
• Interfere with website security or operation
• Introduce malicious software or harmful code
• Misrepresent yourself as representing the Foundation
• Use Foundation materials fraudulently or deceptively
• Infringe our intellectual-property rights
• Use our website to harm the Foundation, our supporters, or others

11. Third-Party Links and Services

Our website may contain links to third-party websites, social-media platforms, fundraising services, payment processors, educational resources, and other external services.

Providing a link does not necessarily mean The Andrea Foundation for EDS endorses every statement, product, service, or practice of that third party.

We are not responsible for third-party websites’ availability, security, content, privacy practices, or terms.

12. Limitation of Liability

To the extent permitted by applicable law, The Andrea Foundation for EDS and its representatives will not be liable for losses or damages arising solely from reliance upon general educational information provided through our website, Guide, or resources, except where liability cannot legally be excluded or limited.

Nothing in these Terms is intended to eliminate or restrict rights or remedies that cannot lawfully be waived.

13. Changes to Our Website or Services

We may modify, update, suspend, discontinue, or change portions of our website, educational resources, digital products, or other services when reasonably necessary.

14. Changes to These Terms

We may update these Terms periodically.

When changes are made, the effective date at the top of this page may be updated.

Your continued use of our website following changes constitutes acceptance of the revised Terms to the extent permitted by applicable law.

15. Governing Law

These Terms are governed by applicable United States law and the laws of the state in which The Andrea Foundation for EDS is organized or principally operates, without limiting any rights provided by other applicable law.

16. Contact Us

If you have questions regarding these Terms & Conditions or a digital purchase, please contact: