About Us
About The Andrea Foundation For EDS
Turning Awareness Into Understanding. Turning Compassion Into Action.
The Andrea Foundation For EDS was inspired by one mother’s 16-year journey to find answers for her daughter, who was born with hypermobile Ehlers-Danlos syndrome (hEDS).
What began as one family’s search for answers has grown into a mission dedicated to individuals and families affected by Ehlers-Danlos syndromes.
Our founder’s personal journey began with hEDS, but our mission embraces the broader EDS community.
Who We Serve
The Andrea Foundation For EDS seeks to serve:
- Individuals living with Ehlers-Danlos syndromes
- Children and young adults affected by EDS
- Adults navigating life with EDS
- Parents and families
- Caregivers supporting loved ones
- Families searching for information and resources
- Communities seeking greater awareness and understanding of EDS
Whether you are just beginning your journey or have been living with EDS for many years, we want you to know:
You are not alone.
Your experience matters.
Your story matters.
Your voice deserves to be heard.
What We Do
Raise Awareness
We seek to increase public understanding of Ehlers-Danlos syndromes through education, storytelling, outreach, and community engagement.
Education & Resources
We work to connect individuals and families with trustworthy educational information and resources.
Advocacy
We encourage individuals and families affected by EDS to ask questions, use their voices, and advocate for themselves and their loved ones.
Community
We seek to build a compassionate community where individuals and families can connect, share experiences, and encourage one another.
Family Support
As our Foundation grows and resources become available, our goal is to expand programs and opportunities that can provide meaningful support to individuals and families affected by EDS.
Why Our Work Matters
Behind every diagnosis is a person.
Behind that person may be a mother, father, spouse, child, caregiver, or entire family searching for understanding.
We believe people affected by EDS deserve compassion, education, resources, community, and hope.
Together, we can turn awareness into understanding and compassion into action.