A mother and daughter walking together, arm in arm, smiling.
A group of zebras on the plain as sunlight breaks through the clouds — the zebra is the symbol of the rare-disease and EDS community.
A mother and daughter laughing together outdoors in a field at golden hour.

Awareness • Education • Advocacy • Community • Hope

From 16 Years of Searching Came a Mission of Hope.

The Andrea Foundation For EDS was born from a mother’s 16-year journey to find answers for her daughter, who was born with hypermobile Ehlers-Danlos syndrome (hEDS).

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Hello & Welcome

Welcome to The Andrea Foundation For EDS

Our story began with one mother, one daughter, and 16 years of searching for answers.

Today, that journey has become a mission of awareness, education, advocacy, community, resources, compassion, and hope.

Whether you are living with EDS, caring for someone you love, searching for information, or simply wanting to learn more, we welcome you.

You are seen.

You are heard.

Your story matters.

You are not alone.

What Drives Us

Our Mission

The mission of The Andrea Foundation For EDS is to bring hope, awareness, education, advocacy, resources, and compassionate support to individuals and families affected by Ehlers-Danlos syndromes.

No family should have to spend years searching for answers and support alone.

Our Mission & Vision
Zebras on the plain, symbolizing the EDS and rare-disease community.
By the Numbers

The Reality of Ehlers-Danlos Syndrome

15 Years Average wait for a correct EDS diagnosis Source: The Ehlers-Danlos Society
1 in 5,000 Americans affected by Ehlers-Danlos Syndrome Source: NIH GARD
13 Types Recognized types of Ehlers-Danlos Syndrome Source: NORD
10,000+ Community members reached through TAFFEDS social media Source: The Andrea Foundation For EDS

What We Stand For

Awareness

Helping more people learn about and understand Ehlers-Danlos syndromes.

Education

Connecting individuals and families with trustworthy educational information and resources.

Advocacy

Encouraging individuals and families affected by EDS to ask questions, use their voices, and advocate for themselves and their loved ones.

Community

Building connections so people affected by EDS know they do not have to walk this journey alone.

Hope

Turning our family’s years of searching into a source of hope for others.

A mother and daughter laughing together outdoors in a field at golden hour.

Our Story

It began with one mother and one question.

For 16 years, a mother searched for answers for her daughter — through appointments, uncertainty, and questions no one could answer.

When the answer finally came, it brought understanding — and a new question: how many other families are still searching?

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From Our Blog

From Our Blog — EDS Education and Awareness

From Our Family to Yours

From a mother’s love came a mission.
From 16 years of questions came a purpose.
From our family’s journey came The Andrea Foundation For EDS.

Our years of searching became someone else’s source of hope.

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