Awareness • Education • Advocacy • Community • Hope
From 16 Years of Searching Came a Mission of Hope.
The Andrea Foundation For EDS was born from a mother’s 16-year journey to find answers for her daughter, who was born with hypermobile Ehlers-Danlos syndrome (hEDS).
Welcome to The Andrea Foundation For EDS
Our story began with one mother, one daughter, and 16 years of searching for answers.
Today, that journey has become a mission of awareness, education, advocacy, community, resources, compassion, and hope.
Whether you are living with EDS, caring for someone you love, searching for information, or simply wanting to learn more, we welcome you.
You are seen.
You are heard.
Your story matters.
You are not alone.
Our Mission
The mission of The Andrea Foundation For EDS is to bring hope, awareness, education, advocacy, resources, and compassionate support to individuals and families affected by Ehlers-Danlos syndromes.
No family should have to spend years searching for answers and support alone.
Our Mission & Vision
What We Stand For
Awareness
Helping more people learn about and understand Ehlers-Danlos syndromes.
Education
Connecting individuals and families with trustworthy educational information and resources.
Advocacy
Encouraging individuals and families affected by EDS to ask questions, use their voices, and advocate for themselves and their loved ones.
Community
Building connections so people affected by EDS know they do not have to walk this journey alone.
Hope
Turning our family’s years of searching into a source of hope for others.
Our Book Is Out Now
A Guide. A Story. A Voice.
Now for saleRaising awareness. Inspiring strength. Changing lives. Every purchase directly supports the Foundation’s awareness, education, and community work.
$12.99
From Our Family to Yours
From a mother’s love came a mission.
From 16 years of questions came a purpose.
From our family’s journey came The Andrea Foundation For EDS.
Our years of searching became someone else’s source of hope.