FAQ
Frequently Asked Questions
What is The Andrea Foundation For EDS?
The Andrea Foundation For EDS is a nonprofit organization focused on raising awareness, providing education and resources, encouraging advocacy, building community, and supporting individuals and families affected by Ehlers-Danlos syndromes.
Why was The Andrea Foundation For EDS created?
The Foundation was inspired by our founder’s 16-year journey to find answers for her daughter, who was born with hypermobile Ehlers-Danlos syndrome (hEDS). That personal journey became a larger mission to help individuals and families affected by EDS feel seen, heard, informed, and less alone.
Does the Foundation only focus on hEDS?
No. Our founder’s personal story began with her daughter’s journey with hypermobile Ehlers-Danlos syndrome, but the mission of The Andrea Foundation For EDS embraces the broader Ehlers-Danlos syndrome community.
Does The Andrea Foundation For EDS provide medical advice?
No. The Foundation provides educational and awareness information only. We do not diagnose medical conditions, recommend individual treatment, or replace consultation with qualified healthcare professionals.
How can I get involved?
You can help by raising awareness, sharing our mission, following and sharing our social media content, expressing interest in volunteering, sharing your story when opportunities are available, partnering with the Foundation, or supporting our mission financially. Visit our Get Involved page to learn more.
How can I donate?
Visit our Donate page and use the secure donation option provided there. Thank you for supporting the mission of The Andrea Foundation For EDS.
How can I contact the Foundation?
Email: info@theandreafoundationforeds.org — or visit our Contact page and complete the contact form.