Blog
The Invisible Disease is a free story series produced by The Andrea Foundation For EDS (TAFFEDS) that follows Ana — a girl born with hypermobile Ehlers-Danlos Syndrome —…
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Every May the global Ehlers-Danlos Syndrome community comes together for EDS Awareness Month — a dedicated time to shine a light on a condition that affects millions of…
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When a child is living with Ehlers-Danlos Syndrome the challenges they face go beyond physical symptoms. They extend into classrooms, playgrounds, social relationships, and family life in ways…
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Of the thirteen recognized types of Ehlers-Danlos Syndrome, hypermobile Ehlers-Danlos Syndrome — commonly called hEDS — is the most common. It is also the type that inspired the…
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Fifteen years. That is the average length of time an Ehlers-Danlos Syndrome patient waits before receiving a correct diagnosis. For women with EDS, the wait is even longer…
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If you have ever heard the words Ehlers-Danlos Syndrome and wondered what they mean — you are not alone. EDS is one of the most misunderstood and underdiagnosed…
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