Get Involved
Help Us Turn Awareness Into Action
The Andrea Foundation For EDS began with one family’s journey, but our mission reaches beyond one family.
Building awareness, understanding, compassion, and community takes people who care.
There are many ways you can become part of our mission.
Share Our Mission
Share our website and social media content with your family, friends, and community. Every share creates another opportunity for someone to learn about Ehlers-Danlos syndromes.
Help Raise Awareness
Talk about Ehlers-Danlos syndromes. Encourage others to learn. Help people understand that someone’s challenges may not always be visible. Awareness can begin with one conversation.
Tell Your Story
Personal stories can help people feel less alone. They can create understanding, compassion, and connection. As our Foundation grows, we hope to provide opportunities for individuals and families affected by EDS to share their experiences.
I’m Interested in Sharing My StoryVolunteer
As our Foundation grows, volunteers can help us extend our reach and strengthen our community. Volunteer opportunities may include awareness activities, community outreach, fundraising, events, educational initiatives, and other Foundation activities as opportunities become available.
I’m Interested in VolunteeringPartner With Us
We welcome opportunities to build relationships with organizations and community partners that share our interest in improving awareness, education, and support for people affected by EDS.
Contact Us About PartnershipsSupport Our Mission
Financial support can help The Andrea Foundation For EDS continue building awareness, educational resources, outreach, community initiatives, and future programs as resources become available.
Together, we can turn awareness into understanding, compassion into action, and hope into community.
Donate