Privacy Policy

1. Information We May Collect

We may collect information that you voluntarily provide to us, including:

• Your name
• Email address
• Contact information
• Information submitted through our contact forms
• Newsletter or email subscription information
• Donation-related information
• Purchase and transaction information
• Information necessary to provide digital products or educational resources
• Messages or inquiries you send to the Foundation

We may also automatically receive certain technical information when you visit our website, such as your browser type, device information, IP address, pages visited, referring website, and general website usage information.

2. Donations and Payment Information

The Andrea Foundation for EDS may accept or facilitate donations through our website or third-party payment and fundraising services.

When you make a donation, the transaction may be processed by a third-party payment provider.

When payments are processed through third-party providers, The Andrea Foundation for EDS does not intentionally collect or store your complete credit or debit card information.

Third-party payment providers have their own privacy policies, security practices, and terms. We encourage you to review those policies before completing a transaction.

3. EDS Awareness Guide and Digital Purchases

The Andrea Foundation for EDS offers a paid digital EDS Awareness Guide and may offer other educational resources.

When you purchase a digital product, we may collect information necessary to:

• Process or document your order
• Provide access to your digital purchase
• Communicate with you regarding your transaction
• Provide customer support
• Maintain appropriate business and financial records

Payment information may be processed by third-party payment providers.

4. How We Use Your Information

We may use information we collect to:

• Operate and maintain our website
• Fulfill our charitable mission
• Respond to questions and requests
• Process or facilitate donations
• Process digital-product purchases
• Deliver educational resources
• Provide customer support
• Send Foundation communications when permitted
• Provide EDS awareness and educational information
• Inform supporters about Foundation programs, activities, campaigns, and events
• Improve our website and resources
• Maintain appropriate records
• Prevent fraud, abuse, or misuse
• Protect our website and organization
• Comply with applicable legal obligations

5. Email Communications

If you voluntarily subscribe to Foundation communications, we may send you information regarding:

• Ehlers-Danlos syndrome awareness
• Educational resources
• Foundation programs and activities
• Fundraising campaigns
• Events
• New resources
• Ways to support our mission

You may unsubscribe from marketing emails by using the unsubscribe option provided in those communications.

6. Cookies and Website Analytics

Our website may use cookies, analytics tools, and similar technologies to help the website function and to better understand how visitors interact with it.

These technologies may collect information such as browser type, device type, pages visited, time spent on pages, and general website activity.

Third-party services may also use cookies or similar technologies according to their own privacy policies.

7. How We May Share Information

We may share limited information with trusted third-party service providers when reasonably necessary to:

• Operate our website
• Process donations
• Process payments
• Deliver digital products
• Send communications
• Perform website analytics
• Maintain website security
• Prevent fraud
• Provide other services necessary to operate the Foundation

We may also disclose information if required by law, legal process, court order, or government request, or when reasonably necessary to protect the rights, property, safety, or security of the Foundation, our visitors, or others.

8. Third-Party Websites and Services

Our website may contain links to third-party websites and services, including payment processors, fundraising platforms, social-media platforms, educational resources, and other websites.

The Andrea Foundation for EDS does not control these third-party websites or their privacy practices.

Visiting or using a third-party website is subject to that organization’s own privacy policy and terms.

9. Children’s Privacy

Our website is intended to provide general EDS awareness, education, and Foundation information.

We do not knowingly collect personal information directly from children under the age of 13 without appropriate parental or legal guardian involvement.

If we become aware that personal information from a child has been collected inappropriately, we will take reasonable steps to address the situation.

10. Data Security

We take reasonable administrative and technical measures intended to safeguard information entrusted to us.

However, no website, electronic transmission, database, or online storage system can be guaranteed to be completely secure.

11. Your Privacy Choices

Depending upon where you live and applicable law, you may have certain rights regarding your personal information.

You may contact us to:

• Ask questions about our privacy practices
• Request appropriate corrections to information you provided
• Request information about applicable privacy rights
• Unsubscribe from certain communications

Some information may need to be retained when required for legal, tax, accounting, fraud-prevention, or legitimate organizational purposes.

12. Changes to This Privacy Policy

We may update this Privacy Policy periodically to reflect changes in our website, services, practices, technology, or legal obligations.

When changes are made, we may update the effective date displayed at the top of this page.

13. Contact Us

If you have questions about this Privacy Policy, please contact: